Thank you all for the heartfelt messages and comments. Please know that we really do read every one and truly appreciate them all. It sounds crazy but each time one pops up it does a little bit to lift our spirits.
Lifting they could do with. The nurse left a little while ago, bearing the news we knew was coming but - like when Quinn entered hospice - knowing something and being told something are two very different things.
That something is that Quinn is at The End. This has been a suspicion in my mind since last Thursday, when I called the nurse to come by for her second day that week - very unlike me. But Quinn was very unlike herself, and I just could not shake the feeling that something had dramatically changed, even as I struggled to pinpoint what exactly it was.
We had a very rough night here, the fever suddenly falling to the bottom of the concerns list. Quinn is no longer tolerating any feeds (she's been off the pump since 2pm yesterday) and the hardest part of that is that she doesn't care. Normally she needs something by mouth - anything. She's past it at this point. She also vented out tremendous amounts of black material, indicating that her body is shutting down (the nurse said it's actually blood), was generally uncomfortable and had at least two absence seizures this morning.
So, here we are. I don't have much to say about it - probably because I know if I start, I won't stop and Ain't Nobody Got Time for That. We can - and no doubt, will - fall apart later. Right now we're just concentrated on keeping Quinn comfortable and the boys and ourselves sane and upright.
I'll leave you with a few photos of our amazing little girl. She never fails to make us smile.