Wednesday, August 7, 2013

Here We Are

Thank you all for the heartfelt messages and comments.  Please know that we really do read every one and truly appreciate them all.  It sounds crazy but each time one pops up it does a little bit to lift our spirits.

Lifting they could do with.  The nurse left a little while ago, bearing the news we knew was coming but - like when Quinn entered hospice - knowing something and being told something are two very different things.

That something is that Quinn is at The End.  This has been a suspicion in my mind since last Thursday, when I called the nurse to come by for her second day that week - very unlike me.  But Quinn was very unlike herself, and I just could not shake the feeling that something had dramatically changed, even as I struggled to pinpoint what exactly it was.  

We had a very rough night here, the fever suddenly falling to the bottom of the concerns list.  Quinn is no longer tolerating any feeds (she's been off the pump since 2pm yesterday) and the hardest part of that is that she doesn't care.  Normally she needs something by mouth - anything.  She's past it at this point.  She also vented out tremendous amounts of black material, indicating that her body is shutting down (the nurse said it's actually blood), was generally uncomfortable and had at least two absence seizures this morning.

So, here we are.  I don't have much to say about it - probably because I know if I start, I won't stop and Ain't Nobody Got Time for That.  We can - and no doubt, will - fall apart later.  Right now we're just concentrated on keeping Quinn comfortable and the boys and ourselves sane and upright.

I'll leave you with a few photos of our amazing little girl.  She never fails to make us smile.


160 comments:

  1. Sending so many prayers, and praying that beautiful Quinn goes in peace...

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  2. HI Linzer family-

    I don't know you but wanted to share some love and thoughts and prayers. Please know that you are not alone. At 3:17 am when you are in bed by yourslef, you are NOT alone. People are sending you love and support. FEEL that from everyone.

    I am so sorry you have had to go through this. You are brave for telling her its ok to go. If it is her time she wont suffer anymore.

    And as far as her list? Love can go to the done column. I look at all of you...she has loved and been loved. That should hav ebeen the first thing checked off. You are a bautiful family and I wish you healing.

    Do not loose site of one thing as you change your journey. Live your life and be happy. THAT is what this little girl would want for you. Yes, you are allowed to be sad. However as you start to heal and go forward, NEVER loose the fact that SHE would want you to live your life and be happy.

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  3. Just thinking of you all and praying for you. I'm so sorry.

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  4. Thank you for sharing your beautiful daughter & her story with everyone - you & your family are a true inspiration & my thoughts & prayers are with you during this extremely difficult time.

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  5. Love you Linzer family! Prayers being sent your way! Bless you little Quinn!!! You are an inspiration to me everyday!

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  6. Praying for peace right now.

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  7. She is so beautiful. May you find peace during this terrible time. Sending love and prayers!

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  8. Thoughts and prayers with your beautiful family! Enjoy your final moments with sweet Quinn making memories. So sorry you must go through this.

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  9. Thinking of and praying for your beautiful family. Quinn, you are an inspiration to us all.

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  10. Hi Linzer Family. I am good friends with another family that had gone through something similar as what you are. The Brooks' in CA. I think you know them...

    My prayers and thoughts are with you and Quinn. I can't imagine your heartache.

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  11. Sending you love and praying for your family. Hoping you find peace and strength.

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  12. Your ability to always do the right thing for your children in these incredible situations amazes me. Your strength humbles me. I am sending all my love. You are all in my thoughts.

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  13. Thinking of you and wishing you peace in this difficult time. Your family is truly an inspiration and please know that I am praying for you.

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  14. Praying for comfort and strength for you and your family.

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  15. You will do the best for Quinn just like you have always done. Sending prayers of love and strength to all of you.

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  16. Keeping you all in my thoughts and prayers. No words can offer much comfort but knowing that there are many that pray, cry and hurt for you helps to feel that you aren't alone.

    Morgan

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  17. God Bless you all at this difficult time. I will pray for all of you.

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  18. thank you for sharing your story and her with us, you are in my thoughts and prayers and I wish you continued strength as well as peace and comfort for your family during the coming days ~Heidi

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  19. God bless you and your beautiful family during this difficult time. You are in my thoughts and prayers.

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  20. I have no words, only my thoughts and prayers for peace.

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  21. My heart breaks reading this. I am sending you and your family many prayers of peace. Little Quinn has had more love in her short time here than most people experience in their entire lifetime and for that she is truly blessed. May God bless you and your entire family and be with you during this time.

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  22. My heart is breaking for all of you. I am so, so sorry you must endure this. Like the other commenters, I can only send love and support and the assurance that there is a host of friends out here doing exactly the same. Sweet Quinn, if this is your time, the most peaceful journey to you, baby girl. You are loved in ways no words can express. xoxoxo

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  23. You and your beautiful little girl are in my thoughts and prayers

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  24. We must each lead a way of life with self-awareness, compassion, love in order to do as much as we can. Then, whatever happens we will have no regrets. - Dalai Lama

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  25. oh sweet Quinn, we love you so much

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  26. Praying for your family & for comfort and peace.

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  27. Bawling my eyes out reading this in a hotel in Frankfurt before we fly back to the states tomorrow. Oh how I wish we could come and comfort you and Brett and the boys. You got a chance to know an amazing little girl, and you created a lifetime of memories for you and her. We love you guys.

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  28. I'm so sorry. Sending all my love and prayers for comfort and peace to your beautiful, inspirational littlest love Quinn and your entire family.

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  29. Eileen and family, I am so sorry! Quinn is such a beautiful bright light! I am so sorry for your heartache! We have different stories, but the same "fall apart later" part. I know there are no words to make this "better"...please know you guys are in my prayers and I'm sending you so much love and a shoulder...I wish you could feel it! xoxox

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  30. She is beautiful. Much love to baby Quinn and your entire family.

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  31. Praying for comfort and peace. Sending love and light your way. Godspeed, sweet baby girl.

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  32. I've followed this story for a long time... I'm sorry that you're here at this point. I really hoped it would never come. Much love to all of you.

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  33. Keeping you guys in my thoughts. Sending so much love to you and your family. <3

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  34. I'm so, so sorry to hear this. I hope you can find some comfort in knowing that you have provided that sweet baby so much love, attention and experience that her light will never leave this world. Believe that and lean on each other. All my good thoughts to you and your family.

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  35. I have followed your story almost from the beginning and Quinn has left a mark on my heart. Although there are few words of comfort know that many you have not met are sending prayers and thoughts to your family and for Quinn.

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  36. Since star gazing is on Quinn's 'to do" list, I bought her a star. I was hoping you would have received it by today. Sharing this story has been a gift to many - you've inspired many and allowed people to see true love.

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  37. Thinking of all of you and sending my heartfelt love and support. - Lex

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  38. I have been following your story since it was on our nightly news (right before the People story). I was and still am in awe of your grace to face such a difficult journey. I can honestly say that I have thought about your family daily, hoping and praying for the best. Quinn has inspired so many people. She is truly a gift from God! Most people go their whole lives trying to find their "purpose"; Quinn found hers. She is amazing and we are all so grateful that you have shared her with us.

    Praying for you from Chicago...

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  39. I am so very sorry for you all. My heart goes out to you. God bless your family as you walk this road. Thank you for opening up about Quinn's sweet life. She is a special little lady. Lifting you up in my prayers...

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  40. Sending prayers for you and know that your family has touched so many, I am in awe or your strength and your love and your ability to share your daughter with all of us.

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  41. I've been following your story, along with Chelsea's, for a while now but this is the 1st time I've commented on any of your posts. I am so sorry to hear this devastating news about Quinn and sending your family all of the love and support in the world..

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  42. Sending you much love. Quinn and your family are in my thoughts.

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  43. My thoughts and prayers are with Quinn and your family. Your beautiful daughter has truly touched my heart and you should know that she has really affected so many people to appreciate the little joys in life that so often go taken for granted. Praying for a peaceful journey for Quinn and comfort for you, your husband and your boys.

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  44. Your family is in the prayers of my family. Her life although not long has been a full one, full of love and opportunities many children never get in a life time. She has been an inspiration and has taught so many people so much. Praying for you as you are forced to learn this new "normal" for your family without Quinn's physical presence.

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  45. Sweet Quinn you are so loved by so many of us who cant be physically with you. Know we are there in our hearts sending prayers for your comfort & peace during this journey, and praying for strength & courage for your loving family as they put you in the arms of the Almighty Protector Who loves you beyond our comprehension. Aching & praying for you all!! ((HUGS)) from Ontario, Canada.

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  46. I wish I had the words to say how sorry I am and how much I admire your strength. you are an amazing mom. You and your family are in my prayers. {{{Hugs}}}

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  47. Your family is truly remarkable and what you have and continue to do to make Quinn's time here the absolute best it can be is amazing to me. You have chosen to live your lives and not let this disease take over which at times can't be easy to do; but you haven't once let that get in the way. So much admiration to your family.

    Thinking and praying for you as you go through something so unimaginable.

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  48. I am a devoted reader of your blog for the past several months. Quinn and your family have a huge home in my thoughts and heart! I am so grateful for your sharing your lives with us, the readers across the country who haven't had the joy of meeting you in person, none the less, we care so deeply. Your words and pictures grip us all. I pray you all have comfort and peace during these daunting hours. I am so so sorry you have to go through this. Your daughter is so beautiful with that grin and those expressive eyes that melt my heart every time I look at her pictures.
    sending you all hugs of love, support, peace, comfort and gratitude for sharing your daughter's beauty with us.

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  49. Dear Linzers,

    I have followed Quinn's story since the article in People. I am so very sorry you are going through something so incomprehensibly difficult. You all are in my thoughts and prayers.

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  50. You two are the strongest and most beautiful people we have ever known. Our love and thoughts are with you now and forever

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  51. Been following you guys for a while after I found a link to your blog about the awesome 'Bucket List' idea for Quinn. I've started writing multiple comments but never followed through with sending them because I felt like such an outsider- but I want to share with you that you are in my thoughts and prayers and I am sending all the love and positive vibes I can to surround you and precious Ms. Quinn during this time.
    Your daughter brings smiles to me and so many others with her adorable pictures and your amazing stories of her spirit!

    Thinking of you, Linzer's!

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  52. Liebe Familie Linzer,

    Ich muss das leider auf deutsch schreiben, denn wie soll ich das, wozu sowieso keine Sprache der Welt im Stande ist auszudrücken, auch noch auf Englisch versuchen. Unsere süßen Mädchen sind so unglaublich perfekt und ihr Weg bereitet uns dennoch so viel Schmerz. Ein Schmerz, der nur von Eltern empfunden werden kann, die ihr Kind auf eine Art lieben, die über alle Grenzen dieser Welt hinausgehen. Die Liebe, die uns berührt hat, als wir von unserer Schwangerschaft erfahren haben, ihre kleinen Hände sich um unsere schlossen, sie uns anlächelten und uns mit Ihren weisen Augen das Leben gezeigt haben - in all seinen Facetten. Nun, da unser Leben so beschenkt und wertvoll geworden ist und durch Liebe zum Diamanten geschliffen, da wird der Glanz ewig in unserem Herzen scheinen.

    Ich hatte leider nie die Gelegenheit euch und euren Schatz persönlich kennenzulernen, aber fühle mich euch durch unsere Mädchen sehr verbunden. Ich habe immer wieder in euren Blog gelesen und möchte euch sagen, dass Quinn sicherlich die besten Begleiter für Ihren Weg gefunden hat. Ich wünsche Euch viel Kraft und Stärke für das, was der Verstand niemals begreifen kann, nur das Herz, getragen durch die Liebe zu unseren Mädchen, vermag auszuhalten. Quinn, du bist wunderbar! Dein Lächeln hat auch mich verzaubert und wenn du voraus gehst, würde es mich glücklich machen, wenn du auch irgendwann Hanna kennenlernen könntest.

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  53. Your family is in our thoughts and prayers. She was an angel among us and will soon be an angel above us. She has a big job to do, watching over your family and friends but if anyone can handle it, Quinn can.

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  54. You are an amazing Mom. Love and light.

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  55. I have admired your strength and courage during this most difficult time. Quinn and the Linzer family have been in my prayers. May God grant you peace. Carol Gurzo

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  56. My heart is broken for your family. My prayers and thoughts have been with you and Quinn all day today. She is such a beautiful little girl. You have a lot of wonderful photos. You shouldn't worry about writing to much. While we like to see updates you don't have to share all that you write if you don't feel like it. Writing is a very good form of therapy. Quinn is an amazing child. How strong she is and still she has a smile in almost every picture you have taken. Your family are strong and courageous. Everything you have done is what you know is best for Quinn.

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    1. i only started reading your blog today, as friends of mine shared it. i live here on hazel place, my daughter has your son colin at summer playground. I want to say your girl is beautiful, and my thoughts and prayers are with you and your family.

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  57. My heart is very heavy and I've been tearing up all day thinking and praying for you all. I've been following since the People story and I am so blessed to have been able to see such a beautiful little girl who lights up the world with her personality. I am so amazed by all you have been able to do with her in such a short time and by how much love she has in her life. She has taught me to slow down and be more aware of the moment I'm in, to focus more on my family and the important little things and appreciate those little hugs from my child so very very much. Be with your little girl and enjoy every wonderfull moment you have remaining.

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  58. I just add my prayers, too. Bless you, baby Quinn, and all the love you brought into this world.

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  59. Sending my heart from Maui. I know of your family through my friend Chelsea. I am so sorry. You have the most beautiful daughter ever. She is precious. Much love to you all.

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  60. Sending many prayers to you and beautiful Quinn! She is so beautiful! I have been thinking of your family and send much love to you all!

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  61. Quinn is beautiful. I found you through Chelsea, and I found Chelsea through Kaitlyn Bourgeault's mom Deanna. I'm keeping you all in my thoughts, and sending you all the strength I can.

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  62. I read this earlier today send now I can't get Quinn out of my mind. I am amazed at her strength and fight. She is a fighter and I pray peace for her. Hugs to her, you And the family. God bless!

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  63. Your strength and courage during this difficult time is amazing. Words cannot express how very sorry I am for what you are all going through right now. My heart is breaking for you. Like so many others I started following your blog a few months ago and instantly fell in love with sweet Quinn, her precious smile and amazing spirit. She's an amazing gift who has inspired so many. Thank you for sharing her with us. Sending lots of love and prayers your way. You are in my thoughts tonight.

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  64. I am so sorry that you are going through this. I know all too well what you are going through and it probably seems surreal, at least it did for me. I pray that she isn't in any pain and that God will wrap his arms around her and your entire family through all of this. Please know that I am here for you. I am praying for you and for her. Love on her every second you can! You guys are doing an amazing job and it was no accident that you were chosen as her parents. We don't always know why things happen but she has touched so many peoples' lives already. Please call me or email me if you want to talk. All my love, Deanna

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  65. My heart breaks for beautiful Quinn and the anguish this must be causing your family. The Davis family are thinking of you all and sending our thoughts and prayers to you.

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  66. We are praying for you like so many others. I am so sorry you have to endure this kind of pain. Please tell Quinn we love her, we do. We are here for you forever Eileen and Brett. Xoxo s

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  67. Praying for your family. God is watching over you and Quinn.

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  68. Eileen & Brett,
    There are no words I can say. You are amazing parents and have given Quinn the very best life. You have shared her story in the most beautiful way. We are thinking of you and sending our hugs and prayers.

    Lauren Gallagher

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  69. Linzer family we are sending special love and hugs to each of you. Quinn is so blessed to be in your family, and I pray for peace for you all in this horrible transition....we are holding you in our hearts. XO

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  70. Praying for strength and calm. Please know that smiling, dancing NPA angels will greet Quinn. Sarah, Jacob, Kaitlyn, Trek, Wylder, Amaia, Gregorio, Lily, Riley, Preston, Mia, Tehyez, Jordan, Adelaida, and those before them are awesome friends.

    Our hearts are broken that such young children earn their wings, but their impact is greater than most of us could make in a full lifetime.

    What an honor for us to be following Quinn's life. Thank you for sharing her with the community. I hope you can feel the love... and tears.

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  71. Lifting you up in prayer, my heart is so very sad for you. Know that people unknown to you across the world are praying.

    "The Lord will work out his plans for my life - for your faithful love, O Lord, endures forever. You do not abandon me, for you made me." Psalm 138:8

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  72. I have been praying for your family ever since I read your story. Thank you for letting us into your lives to share in Quinns beautiful life. Sending love from my family to yours and praying for peace as you enter this sad time. The Lopez Family <3

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  73. I am a nurse and have been following Quinn for a few months now. You all bring me back down to earth when I think my problems are overwhelming. Every day I work with special needs children, loving them, caring for them, smiling and laughing with them and watching as their diseases take them from us. I share your blog with my staff so they can be grounded as well. I have loved Quinn and your family and pray for you all. May she go in peace, God bless you all and thank you for sharing your life with me.

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  74. Eileen & Brett,
    I have been following Quinn's journey of love since Nannie Carney told me about her. Nannie and I were neighbors over 50 years ago in Hicksville. We have been praying for Quinn and all of you every day since hearing about her. I was so happy we could support all of you at Quinn's Benefit so many months ago. You are an inspiration to all who read your blogs, keep the faith, keep loving and realizing the miracles. Your boys and you will never have a day without a sweet thought of sweet Quinn. May God give you all peace and knowledge of His love for you all.

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  75. Have been following Miss Quinny's story for a bit now. My heart breaks for all you. Drink in every moment of that sweet face and know that you have a ton of us out here holding you up even if you don't realize it. You've been the most incredible parents to that little princess and have given her a lifetime of wonder that some people don't even get the chance to have in many years. I wish you all peace...especially Quinn!

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  76. Thank you for sharing sweet Quinn with the world - she has changed the lives of so many. As parents you are an inspiration. I wish you a peaceful next few days and wish in some way I could take away even a fraction of your pain. Quinn will forever live on in your beautiful family.

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  77. Love love that last picture of Quinn. Blessing, hugs and prayers to you. I commented yesterday I've been following your story ever since my friend Chelsea shared on her blog. I have no computing words but know you are in our thoughts. - The Kasper's

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  78. Peace, love and light to you and your sweet family. My heart breaks for you. God Bless you.

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  79. you have been heavy on my heart this evening. know you're being thought of and prayed for right this very moment.

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  80. Linzer Family,

    You are all amazing and tremendously brave. Quinn is beautiful and you are all in my thoughts and prayers. Thank you for sharing your lives with us and allowing us to follow Quinn's story. You're family is a true inspiration.

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  81. Just coming back to give you another hug. my stomach is in knots worrying for you guys. I dont know how to say that I am hoping for the best for you guys...I wonder what that looks like. Strength in some form, perhaps...to get through the hours. I hope Quinn is feeling as peaceful as possible, and I'm watching your site for updates (although you surely want to focus on Quinn right now). Sending love...

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  82. I pray for you and your family to find comfort and strength in all of the love being sent to you all. God bless this little angel.

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  83. Praying for you, your husband and your sweet boys! I know that Quinn will be well taken care of today and forever. Never even met you all and I worry so much for you as a Mommy, her brothers and her Daddy. Praying for you all!

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  84. I have followed your family's journey and my heart is breaking for you all right now. You all are in my prayers and thoughts. I pray that Quinn's last days are peaceful without suffering. This is such a cruel disease and I pray that as attention is brought to Neimann-Pick A through courageous family's such as yours the medical community will fund the much needed research into giving families dealing with it hope. Hugs from Texas.

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  85. Prayers of love strength & peace

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  86. Your story has been breaking my heart since I found in, months ago. No parent should ever have to go through this and, yet, I also believe that God finds only certain people who bear enough strength to handle it.

    You, your husband, your boys and your sweet Quinn are in my thoughts and prayers. May her journey be painless and peaceful and may your family someday have days that are less difficult than your days ahead.

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  87. Many prayers to all of you. You have been such amazing parents to such a beautiful young lady, breathing so much life into a life that is way too short. You have made every moment, every breath worth breathing for that beautiful child. Blessings to all of you.

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  88. My thoughts and prayers are with your family, and especially with your sweet little Quinn. I stumbled upon your blog and have been enamored with Quinn ever since. May God surround Quinn with peace and love as she endures this, and may God do the same for you and the rest of your family.

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  89. My thoughts and prayers are with you and your family. I have been following your blog since earlier this year and my heart is broken after seeing this update. Your beautiful sweet baby girl has changed my life and the lives of many others through sharing her story. You are in our hearts Linzer family. Big hugs from Ottawa.

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  90. Dear Eileen - I can't quite communicate how your story has touched my life. I was an avid viewer of LIW boards in 2005 and graduated to LIF with you. That is where I first read about beautiful Quinn. You and your family are in my prayers everyday. I am in awe of the beautiful things you do for Quinn, and I'm humbled by the grace with which you are handling this overwhelming situation. Just know that there are so many people (even those of us who you have never met) who are praying constantly for your and your family. God Bless!

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  91. Dear Eileen, Brett, Colin and Reid,

    Beautiful Princess Quinn has been surrounded by incredible love and care from a special family during her journey. I am Beth Davis' aunt and have followed Quinn through her beautiful pictures and bucket list. You are an amazing family and have faced Quinn's illness with grace and a special love. Quinn will always be with you from the wonderful memories that you have created as a loving family. Sending you love and positive energy to face the days ahead.

    Bonnie Glick

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  92. Quinn, we blew bubbles in the house, ate chips on the couch, and jumped on all the beds in your honor today. You're all in our prayers and this world is a better place because you've graced it. Keep smiling, pretty girl <3

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  93. My thoughts are with all of you.

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  94. Sending you and your family so much love and many, many prayers. Quinn is such a beautiful little girl and this news is so hard to reconcile in my mind as I look at the pictures of a sweet, content baby. I so enjoy reading about Quinn's adventures, and thank you for sharing your lovely family. I will be praying for you in the days ahead, that you will somehow find comfort and peace. <3 from Indiana

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  95. Sending love & strength from New Zealand.You have so many people around the world that are caring for you all & thinking about you all .Look forward to the day when you will walk with your beautiful daughter again in heaven.

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  96. (((((HUGS))))) Lots of hugs. More hugs than yesterday.

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  97. Irish blessing
    May the road rise up to meet you.
    May the wind be always at your back.
    May the sun shine warm upon your face;
    the rains fall soft upon your fields
    and until we meet again,
    may God hold you in the palm of His hand.

    May all the Angels be with Quinn and her precious family these days. Anybody who got to know this little angel during her journey on earth is truly blessed for sure. May love and power be with you these days.
    Hugs from Austria

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  98. Thinking of your family from Michigan. Many hugs!

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  99. My thoughts and prayers are with all of you....much love from Texas!

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  100. You did good. Peace and love to you all and especially to sweet little Quinn.

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  101. Such a beautiful girl. Popped over from Trek's page just to send you some love and good wishes. xxx

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  102. I am so sorry your time with your little girl is coming to an end. I will ask my Angel Alexander to find her in Heaven and to show her all around. She will have many new friends.
    Prayers for all of you during this difficult time.

    Nancy Whipple

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  103. Sending you love and grace and peace.

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  104. Oh I have been keeping up with all the beautiful NPA mommies since Treks diagnosis. My sister-in-law is a good friend of Chelsea and thought I would enjoy her mommy blog. A month later I was riding the NPA roller coaster with all of you. Then this year on Mother's Day my daughter lost her 15 month old cousin Lucy to advanced cardiomyopathy. It was a complete surprise. I sent Lucy's momma a link to all of you guys in hopes that it could help in some way. Sara (Lucy's mom) has been grieving in a very open way http://kittymomma.com/ is her link if its helpful. I can't say how much every single mom I know going through this has changed me. It's not a change you can put into words, but it almost like something clicks on a cellular level you can feel it but you can't describe it. I guess just the way you look at the world is different more rich and full. You know you need to slow down and absorbe it instead of racing past the present to get to that future goal. It's a gift that you guys gave me. We are thinking about our Quinn. Thank you for sharing her with the world!

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  105. My tears fall for you and your family. Thank you ALL for having such open hearts to share this journey with all of us. We hold you up during this time. Safe passage and peace to baby Quinn. You'll always be remembered.

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  106. words cannot begin to describe the beacon of light, love and inspiration your family has been to us. sending quinn all the love in the world. thank you for letting us share in the miracle of quinn. much love

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  107. I am so sorry you are going through this. I am also so very inspired by your strength through all this. I cannot even begin to imagine how hard it must be. Your story has touched me to the point I feel I know you and your family. This morning as I opened my email I had a say a quick prayer that there was not a blog from you, or that it was good news. God has done amazing things for her. I am sending all my prayers and love to you and your family. Thank you for allowing us to get to know that special little girl.

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  108. Quinn has the most beautiful smile and sparkling eyes that are wise beyond her years. She has impacted more people in her young life than others do in decades. No one lives forever...it's the legacy one leaves that's important. It will just be so hard because you will miss her so much...and I can understand just by looking at her what a delightful child she is. My heart breaks with you. Your decisions have been courageous, and you have given her a life filled with happiness and love. We will always remember Quinn and your deep love for her. Hold her tight. May she know no more pain.

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  109. I have been following along for some time but I've never commented before - I never seem to be able to find the right words. Just wanted you to know that I am praying for sweet Quinn and your family. I know you must be so thankful for the short time you have gotten to spend with her, but I'm sure that doesn't make this process any easier. You all are certainly in my thoughts and prayers.

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  110. I have been reading for a long time, but wanted to say that my heart is absolutely breaking for you and your family. I hope you are able to find some peace in the wonderful life Quinn has had in such a short time.

    huge hugs from nyc.

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  111. I have been following your blog for awhile now, and as Sarah said above, I haven't been able to find the right words. I just want to say that I am praying for you and your family. God bless.

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  112. I have been following Quinn's journey through our mutual frients Beth & Brad. Even though we don't know each other I have cheered for Quinn and your family. Last night, I cried for Quinn, for you, for your boys. Today, Beth came by and we hung up a purple ribbon at our house for Quinn. Wishing you strength and sending you love. Mindy Albenda

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  113. Such a sweet loving family. May the time you've spent together and memories you've made bring you peace and comfort. You are in my thoughts and prayers. Give that sweet little baby girl Quinn lot's of love.

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  114. Dear Eileen, Not a day goes by that your family is not in my thoughts & prayers. Today is no different, except the prayers are stronger for all concerned. You have handled Quinn's journey with such grace & dignity that few people possess. We know that Quinn was put here for a special reason & she will continue her journey as she moves on. Please know that you will never be alone as you will always have the love & support of your family & friends.
    With love, Sandra & David Benson

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  115. I still can't get Quinn off my mind! Praying and sending lots of love and peace to her!

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  116. Thank you for having the strength to share Quinn's story and your journey with all of us. I am so sad reading this news today but am a believer in the power of community. We are all "here" to lift you up as you continue on this journey. I know you and your family will handle this next step with the grace that you have always shown. You have given so much to Quinn in her short life...it has been full of meaning and, much more importantly, love. And along the way you have taught your boys a wonderful lesson too. They will grow into wonderful men! Hold your family close...I will certainly do the same. We are all praying for you.

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  117. I am another silent follower, as I suspect many of us have been...not knowing just what to say or how to convey our sorrow. But that's not my only reason for being a quiet observer. After seing your story on the news, I immediately went to your blog & subscribed. And, although it was evident that Quinn was ill, somewhere in the back of my mind, I never thought that these days would come. She is so full of life, energy & laughter, that despite the odds, I knew little Miss Quinn would beat them. Yet, your recent posts have made it clear that this good thing must come to an all too abrupt end. Please know that many prayers have been said for your baby girl & even today there is hope that your miracle can be granted a miracle. However, if the One with the master plan chooses that he needs her smile with him & takes her home; we will continue to support you, to lift you up in prayer, to mourn for your great loss. Until then keep on keeping on! Continue to do what you do best...love Quinn!

    I think there is something extraordinary that can be added to Quinn's list. Maybe she didn't set out to do this, but she was born to do it!

    "Be loved by family & strangers alike & change the world one smile at a time!!"

    May the Lord bless & keep you, may peace be with you always...

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  118. Eileen, you can talk all you want. It helps, I know. The more you talk the more emotional you get and that's part of the process. When you are ready, it will come flooding out.
    Please, know that I'll never forget your lovely family and will treasure Quinn's sweet little face always.

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  119. Dear Eileen,

    We have never met, but last summer my daughter Rieley played with your boys at the pool a few times. My mom had told me that Rieley had met two nice little boys, with a baby sister named Quinn. As I was expecting my second daughter at the time, Quinn's pretty and uncommon name stood out to me. (It didn't hurt that my mom repeatedly voted it as her new favorite name choice) Just a few months later I was terribly saddened to stumble across your blog and the news of Quinn's illness. Since that time I have followed her journey from afar, keeping Quinn and all of you in my prayers. I wish your family strength, peace, comfort and love through this difficult time.

    Kiera Cohen

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  121. As I have been following your blog since the People article, a day does not go by that I don't wonder how you, Quinn and the rest of your family are doing. Knowing that the end is near is hard to fathom, but READING it is heartbreaking! You are an AMAZING family with an AMAZING little girl. I cannot imagine walking in your shoes and I am in awe of your strength. My thoughts and prayers are with you.

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  122. Dear Eileen,
    A friend posted your blog link about beautiful Quinn on her Facebook page yesterday, and I clicked on it. I read and cried, and read and cried. Though we have never met, my heart aches for you.
    Sending thoughts and prayers to you and your family!

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  123. Still sending so many prayers and so much love to your family and especially beautiful Quinn

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  124. A friend of mine wrote about your family on facebook. I am so close with my family that when I have a difficult time I know that their comfort and love will get me through whatever it is that happens. Nourish those happy memories so that no matter what happens her little brothers and the rest of your family will grow with her happy spirit all around every day. You are all growing with her happy spirit and her strong will right now. Some people are never happy and they live their whole life that way. She is happy and lovely and wants every day that is given to her. That is a way to live by. God bless your family each and every day. You are a beautiful mother.

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  125. My thoughts and prayers are with you. Sending love.

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  126. Dear Linzer family;
    Thoughts and prayers with you all, especially dear Quinn. I wish you all peace, love, and strength as you continue through this part of Quinn's all-too-short, but very special, life journey.
    I have enjoyed reading your blogs and learning about Quinn, NPA, and your family, and I'm completely blown away with your ability to remain strong, fulfill Quinn's wishlist, and maintain a sense of humour along the way. Your blog posts are funny & entertaining, deep & thought-provoking, memorable and well-written. I hope you continue to share Quinn's journey, as well as the rest of your family's journey.
    Sincerely, Shona P.

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  127. To the Linzer family... My thoughts are with you at this most difficult time.

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  128. Miracles do happen ... My prayers are with your family dear Quinn

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  129. Eileen- I have been following your blog for a long while now. I have never commented until now because there is nothing that I can say that will be comprobable to what you have been going through. Quinny has been in my thoughts and prayers. Reading your blog has made me smile and cry and makes me hug my three kids a little harder at night. It makes me realize how short life is and how we shouldn't take anything for granted. You are a truly wonderful person and Quinny is a beautiful little girl. Each minute you get to hold her is a blessing. She should be proud to have you as her mom. With love from whitestone NY- Jillian Perrone

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  130. I am sorry to hear this news about Quinn. She is a sweet, dear little girl. I am praying for her and for your family. I have been reading your blog, although I never made a comment before this. I learned about Quinn from Chelsea Ingram's blog. I never commented because I didn't have anything helpful or useful to say. But I want to let you know that even though I have never met you or Quinn, I prayed for you guys, and I still am.

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  131. I am so sorry you and your family have to go through this pain. Life is really shitty and painful at times. But it's also really beautiful too. Quinn is evidence of that.

    You are not alone. We are all standing by you - even though you may not know us by face or name, we all share a common love of Quinn.

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  132. Eileen and Family,
    Tears stream down my face while I type... What a beautiful life Quinn has shared with you all. An amazing gift you've given her.
    My prayers that God grant you all some peace during these difficult days.
    With Love,
    Jenny Bernhard-Kelly and Family

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  133. Thinking of you all. Beautiful Quinn touches so many lives everyday. Hoping for peace and love for all of you and a cure for this horrible disease that has robbed you. With love, Leslie

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  134. May God give you grace for these tough moments and strength for the long road ahead.

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  135. I am thinking of you often and wishing peace for all 5 of you. I am so so sorry this is happening. I have thought often today of a metta prayer that wishes everyone feelings of safety, strength, contentment, and ease with life. I have always taken that last piece to mean not fighting was is and instead meeting it with as much grace as I can muster. It sounds like this is what you are trying to create for Quinn. Peace and ease in her final days. This is an enormous act of parental love.

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  136. I hope you find some comfort in knowing how many lives you've touched with Quinn's story. You remind us how fragile life is and to embrace every moment we have with loved ones. You've left a print on my heart and I'm sending prayers and love your way.

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  137. I have been following your blog for quite some time now, and it is apparent that you were sent an angel to be with you for a while. Her purpose here has been completed, and she may leave this world, but will be an angel still, watching over you and your family for all the rest of your days. Bless you all, and God grant Quinn peace.

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  138. Going to bed, sending you all the love I can.

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  139. You and your family are a blessing, I've been following your blog for awhile and I loved reading all about Quinn's adventures. I am praying and thinking of you all during this time and know that love is being sent from all over. I know I don't know Quinn personally, but I'll always remember her and her spunk that shows through all pictures you post. Much love coming your way from Wa State.

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  140. Prayers for you, sweet Quinn. And prayers for your family, whose lives you have forever changed.I have been following this blog since I saw Quinn's story in Newsday. Quinn, and you too, Eileen, has touched my life and has inspired me to be a better mother.

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  141. You guys continue to be in my thoughts and prayers. That's all...xoxox

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  142. My thoughts have been with all of you. Thank you for sharing your sweet little family with us! May you find a measure of comfort in knowing that you are in our thoughts.

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  143. Sending prayers, love and light to your sweet baby girl and beautiful family.

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  144. Sending big hugs to you all. I hope you have collected some special moments in these last few weeks, held the kids close. Tell the boys we are thinking of them, too...XO

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  145. It never fails that after reading one of your blogs I just want to hug my little girls. Thinking of your family and wishing you some quality family time together this week. XOXOX

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  146. Thinking about your family and your amazing Quinn--I know you are just soaking her up right now. I'm so, so sorry--she is just the sweetest little thing, and I'm so few grateful that you've shared her with us. Hugs to all of you, Linzer family!

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  147. Dear Linzer Family,

    I've kept up with your blogs and am amazed at Quinn's strength and tenacity with what she's been dealt and your family is amazing at handling Quinn and her sickness. She has this quality that makes my qualms seems as miniscule as dirt, she makes me want to live my life and makes me want to squeeze my kids tighter when I give them hugs and tell them all the time that I love them. Thank you Linzer family, I am continuously praying for Quinn and your family.

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  148. You are by far the strongest woman, mother i have ever seen. wishing you and your family some peace in this unimaginable time...hold them all tight. thoughts and prayers with you all.

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  149. Just reading this and praying for your family and your precious daughter. You will continue to be in my prayers.

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  150. Dear Linzer Family,
    I am sending prayers and support to your precious little girl, your family and loved ones during this most difficult and sad time. Chelsea has kept us up to date on her blog and I so enjoyed the precious and sweet photos she posted of your dear children.
    Chelsea's OH friend,
    Connie

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  151. Dear Linzer Family,
    Although I only "know" you through your beautifully written blog, I have been touched forever by sweet Quinn. One thing that is incredibly clear is that she has experienced more love in her much too-short life than many can ever dream of. Sending prayers of strength and comfort.

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  152. You are each in my thoughts and prayers. Quinn is an amazing little girl who will leave such a huge footprint on this earth. Thank you for sharing her with us for the short time she is here.

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  153. Eileen, I am aching for you. You are in my prayers more than ever. With great love, Kelly

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  154. Oh my, can you imagine Quinn is now free of all her pain and disease! That sweet little flower is dancing in heaven right now! She is sitting in the great lap of our loving God the Father! My heart breaks for you her wonderful family. I know you are full of gratitude for the 15 months that she was in your arms. May peace be yours tonight and always.

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  155. My heartfelt condolences to you and your family. You made the most of a short time and hopefully those are the memories that will keep you going.

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  156. thinking of you all...the boys, Quinn, mom and dad...sending love...

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