Wednesday, November 21, 2012

Today I Am Thankful For

(in no particular order)

...the physicians who tirelessly pursued a diagnosis, offering us a luxury no other NPA parents have had - knowledge of the disease at only three months, giving us the opportunity to know how much each and every moment counts.

...our incredibly supportive family and friends.  For as helpless as each one of them has proclaimed to be, that simple proclamation and their continued actions of reaching out to us has been more helpful than they will ever understand.

...the two nutballs that roam our house, also known as Colin and Reid, for demanding that we keep our sanity and (at least some of) our wits about us by simply being three and four.
ok, so their nuttiness probably comes from somewhere

 ...the other NPD families, for being there to answer our questions and offer the comfort of community even as they continue their own disease-related struggles.

...our home, which was spared the wrath of Sandy, as we have seen how awfully destructive she was to our neighbors.

...the Healthcare Reform Act, for abolishing the heinous practice of coverage denial due to preexisting conditions.
the face of pre-existing condition

...the strength my partnership with Brett has been proven to have in the face of such adversity.

...every.single.SECOND I get with one Quinn Madeleine Linzer.

Eileen, Brett, Colin, Reid and Quinn


  1. Such strength and truly teach us what it is to be thankful. I hope you have a wonderful Thanksgiving - keeping you in my thoughts and prayers.

  2. So much to be thankful for...especially, every - single - SECOND with your littlest sweetie. Have a most wonderful Thanksgiving!